Please Help Thousands Of Babies By Signing This!!

you get offended too easily brother.

chill winston.
tek a chill pill like hew
chill ya sel man sonna etc...

go watch your fav episode of lost and think happy thoughts

look on the brightside


at least youll be able to use yer kid as a bedside table.

woosaa and all that shite.

besides, i've learned the true value of the ignore function

Get YOUR facts right -

As stated by Great Ormond Street Hospital "Plagiocephaly affects around 50% of babies under one"

Babies are NOT checked for plagiocephaly at birth OR at 6 week check-ups "THAT IS WHY WE ARE ASKING THIS TO HAPPEN ON THE PETITION".

In Scotland there are NO hospitals which provide treatment on the NHS for plagiocephaly.

At present parents ARE NOT being advised on repositioning or even told that the condition has a name. I speak on behalf of over 50 families I am in contact with in Scotland whose babies have plagiocephaly.

HELMETS DO WORK - Robbie measured at 15mm assymetry (this means that his left side of his fact "plagio side" sticks out 15mm further than the other. 6 weeks after having his helmet fitted his assymetry had reduced to 7mm).

We are also asking on the petition that a medical trial takes place to PROVE to the NHS that helmet therapy DOES work. At the end of the day if parents are advised on repositioning then this should avoid helmet therapy being necessary in the majority of cases. A very small percentage of babies who suffer from plagiocephaly are born with it. Most develop it due to their heads resting on hard surfaces at around 4-8 weeks.

Now you have the facts.

If you want any further information or advice then please look at www.headstart4babies.co.uk or www.plagiocephalyuk.co.uk

On another note folks - thanks all soooo much for your help on this. The petition closes tomorrow at midnight and we almost have 1500 signatures on-line and have around another 4,500 on paper. Fingers crossed and will keep you all updated.

IF YOU HAVEN'T SIGNED ALREADY THEN PLEASE PLEASE SIGN NOW

Thanks from the bottom of our hearts.

Love

Claire & Robbie xx

It really hurts as a mother here that you lot of insensitive WANKERS think it funny to slag off my 11 months old son.

YOU SICK FUCKS!!!!

HOPE WHEN YOU HAVE KIDS THEY ARE BORN WITH 3 HEADS & THEY ARE ALL SQUARE ONES!!!

To everyone else who has showed their support thanks again.

Take a proper read at the petition when you go to the site on-line to sign the petition - GO TO INFORMATION. You willl then see exactly what we are asking. IT IS NOT JUST ABOUT GETTING THE HELMETS ON THE NHS (Infact that is the least important issue and the last on the list of 4 points).

I am a trustee of the charity Headstart4babies. The only UK charity to offer support on plagiocephaly. I am in control of the Scottish side of things and offer support to families throughout Scotland. We are desperately seeking sponsorship to try and do research into plagiocephaly, but to date no-one has come forward.

do you know of anyone?????

wishful thinking.

How are we being heartless?

Its not like your child suffered, still has a flat head or is in any danger.... he/she just looked funny for a few months.

How is it any different from wearing braces?

I think the notion of a 6 week check-up is a good idea and cost effective, but if the condition is as common as you say giving away helments (if they are unproven) to every egghead in the country would take away large amounts of money the NHS couldn't afford.

My grief wasn't at your flatheaded offspring - it was at the majority of this board that signed the petition blindly.

sorry if I've offended you or robbie

xx

Have you been resting Robbie on the bar you work at?

I wish - am still on maternity leave - not back at work yet. Will be soon though. Just me that rests my head on the bar!!!

Anyway, I need another 13 signatures to make it up to 1500. A nice round number.

PLEASE HELP!!!!

I'll get you a couple of signatures... I'm worried I'll get bad karma

MUCH MUCH APPRECIATED.

All 3 helmet providers in the UK have approached the NHS to work alongside them to do trials - but nothing has ever been approved.

In Scotland - a hospital in Glasgow has put forward a protocol to do a trial and hopefully this petition will help them get the funds they need. The Orthotists at Yorkhill Children's hospital have agreed to make the helmets.

Fingers crossed!!!

Thanks for your interest and ideas by the way!

People are going to court left right and centre to get tamiflu and herceptin treatments for cancer.

Why should the NHS spend money on helmets for babies like Robbie over life-saving drugs like these?

Maybe those particular drugs are a bad example, but my point still stands.

Quoted before i deleted t. Darn

Anyway, do what joe suggested and read up on it. Kids grow so quick that it's all but disappeared by school age.

Next time i'm back in newcastle i'll post some of my baby pics in this thread. My head looked like two watermelons having a fight, but was fine by the time i got to about 5.

I've not signed the petition and i'm not going to. It's just some whinging personal crusade that pulls a few heart strings but will eventually amount to nothing. Plegiocephaly has been around for as long as there's been hospitals. The only people championing these helmets are people with personal experience like Claire, and the drug companies who make the things and will profit from their use.

Claire, the above's not meant to be harsh. I'm glad Robbie's getting on fine, but in all probability he would have been fine anyway and you'd be two grand beter off.

THANK YOU SO MUCH FOR GIVING ME THAT WEBSITE. I HAVE NOW E-MAILED THEM ASKING IF ANY TRIALS ARE GOING TO TAKE PLACE AND HAVE ALSO E-MAILED ROBBIE'S HELMET PROVIDER ASKING IF HE WOULD BE INTERESTED IN CONTACTING THESE PEOPLE.

THANK YOU THANK YOU THANK YOU

just to let you all know that the standard reply from the NHS with regards to plagio is

"it will grow out" "hair will grow in and cover the deformity"

I can assure you that the head does not sort itself in all cases. I did the baby show through in Glasgow at the beginning of March. We got signatures for petition and gave out lots of information. I must have looked at over 60 babies heads over the weekend with severe plagiocephaly.

I also looked at 8 CHILDRENS HEADS WHICH WERE SEVERELY DEFORMED AND THESE CHILDREN WERE AGED BETWEEN 7 AND 12. The NHS state that it will fix itself by the age of 5. THIS IS NOT ALWAYS TRUE!!!!

Also, there is a website on-line based in America but with members from all over the world. The website is a support group for people with unresolved plagiocephaly. There are adults on that site who are now severely depressed and some even suffer from agrophobia. Some children aged around 7 have had major surgery to fix their plagiocpehaly - this involves cracking open the skull and realigning it. A BIT HARSH DON'T YOU THINK WHEN IT CAN ALL BE FIXED BY THESE HELMETS WITHOUT ANY PAIN.

Another point is that these helmets could be produced by the NHS at a fraction of the cost that I paid. I reckon that orthotists could make the helmet for under £500. Then the baby only needs reviewed every 6 weeks for up to 6 months. I would say that this would prove cheaper than going to the operating theatre. Wouldn't you???

Again, if the NHS listen to points 1 and 2 on the petition and check babies at birth and 6 weeks for plagiocephaly. Then if present ensure that parents are advised on repositioning then this in turn should avoid the need for helmets in the majority of cases.

Babies' heads sound incredibly pliable. Which reminds me... there's a japanese website somewhere where they grow babies with their heads in weird shaped vases and jars so you can get babies with miniature heads and funny shapes. Actually the more i think about it, it might've been cats.

Done

What a cutie